We found out back when Sofie was 4 months that she needed to see an eye doctor because of her difficulty in focusing her eyes on one subject. We went to the first doctor, a local eye doctor in Logan who told us about horizontal nystagmas. Since she was so small at the time, he referred us to a doctor down at Primary Children's in Salt Lake City. Back in April, the only time that we could get in was clear up until last week! The wait was honestly pretty annoying considering that we were a little bit worried about what we would be dealing with. Primary Children's has an amazing reputation, so we were glad to get an appointment there.
We headed up to the hospital last week. Taylor wasn't able to make it due to work, but my Mom was able to come down and go with me. She was a lifesaver! Playing with Sofie, reading her stories, feeding her, keeping her entertained...thanks grandma!!! We ended up meeting with the doctor and getting the same diagnosis. The doctor was really firm and abrupt. It was hard to ask any questions but we knew he was just trying to do his job. Apparently when children have nystagmas, it can also cause other developmental problems which was his main concern. We were ordered to do a VEP test (which we immediately googled once the doctor left the room!) next door at the Moran Eye Center. Luckily they were able to fit us in that day. The test ended up looking great! Basically our next step is an MRI to check for any brain development issues since she doesn't have any physical development difficulties. We are hoping for positive results!